[PDF] A collaborative approach to improving outcomes in rare rheumatic and musculoskeletal diseases: report from a national workshop

Source:
British Society for Rheumatology - BSR
Publisher:
British Society for Rheumatology (BSR)
Publication date:
01 May 2016

Abstract

This report outlines a programme of work that BSR is leading on to improve care for people with rare inflammatory and autoimmune diseases. It builds upon a national workshop hosted by BSR in November 2015, which brought together a range of stakeholders to help raise the priority of these conditions. Recommendations include: enhancing condition knowledge across all health professionals, developing national audits for rare conditions and improving the data available to the NHS through disease registries and specific coding.