[PDF] Audit of bone health in Duchenne muscular dystrophy

Source:
Guidelines and Audit Implementation Network - GAIN
Publisher:
Guidelines and Audit Implementation Network (GAIN)
Publication date:
01 April 2016

Abstract

The overall aim of this audit was to determine whether the service provided to children with Duchenne muscular dystrophy (DMD) meets the required standards for bone protection in accordance with best practice.

We based our assessments on the following international standards:

  • Diagnosis and management of Duchenne muscular dystrophy, part 2: implementation of multidisciplinary care. Bushby et al. (2010)
  • North Star Medical Assessment Sheet, North Star Clinical Network for paediatric neuromuscular disease
  • 170th ENMC International Workshop: Bone protection for corticosteroid treated Duchenne muscular dystrophy 2009 Naarden, The Netherlands. R. Quinlivan et al. (2010)