[PDF] Quality of life measures for carers for people with dementia: measurement issues, gaps in research and promising paths

Social Services Research Group
Social Services Research Group (SSRG)
Publication date:
01 March 2016


Providing support to a family member with dementia often comes at a cost to the quality of life (QoL) of the carer (caregiver), giving rise to current and future unmet needs for health and social care and support themselves. These have important implications for cost-effective health and social care support services and pathways. This article summarises the findings of a scoping review of the literature on QoL measures for carers of people with dementia that was commissioned by the Medical Research Council to address what is ‘state of the art’ in measurement and identification, any gaps in the evidence base, and challenges for further research.