Counting the Cost: Chronic Fatigue Syndrome/Myalgic Encephalomyelitis

Publication date:
28 September 2017


The Optimum Health Clinic (OHC), a charity specialising in the research into CFS/ME, launches in conjunction with the think tank 2020health, ground-breaking research assessing the costs of CFS/ME to the UK economy. This study entitled “CFS/ME: counting the cost” is the first study to assess both the direct and indirect cost of this illness.


We undertook a comprehensive UK cost-of-illness study on CFS/ME, based on recorded patient data from both specialised services and primary care. Data were found in (i) economic evaluations within clinical trials for CFS/ME, and (ii) cross-sectional economic studies of CFS/ME. Only (peer-review) papers from the UK were included due to significant differences between the UK and other countries in regards to health care system structure, employment, earnings and benefits. Papers from other countries were used to corroborate findings.