||Uncertainties identified from clinicians' questions
||James Lind Alliance Palliative and end of life care Priority Setting Partnership
|Why is there uncertainty?
||No relevant systematic reviews identified
This uncertainty was identified from three bereaved carer's and three professionals' questions.
This is an indicative uncertainty and the following submissions were merged to form this one:
I feel it important to enable people with MND (for example) and other rarer and rapidly progressing conditions to gain access to palliaitive care as early as possible, long before the person is nearing the end of their life
People living with MND can deteriorate quickly, so judging when the 'just in case kit' should be considered can be tricky. When is the optimum time and who is the best professional to raise the matter with appropriate clinician?
Why is there no fast track system for putting in place support, equipment etc for people with rapidly progressing conditions such as bulbar onset MND?
References to reliable up-to-date systematic reviews:
|What is needed?
|Systematic reviews that need updating or extending
|Systematic reviews in preparation
|Ongoing controlled trials
|Which health conditions?
||Neurological conditions | Service delivery, organisation and staffing | Palliative and end of life care
|What is person's age?
|Which types of treatments?
Patient Satisfaction; health related quality of life; health related cost; timing of introduction of palliative care; quality of care
||Publication date:08 Sep 2015
|Last reviewed date:08 Sep 2016
||Publication Type:Known Uncertainty
|The DUETs team endeavours to ensure that information is correct at the time of data entry