What are the best ways to manage the problems associated with difficulty in swallowing, including for patients with Parkinson?s disease, Motor Neurone Disease (MND) and dementia who are at the end of their life?

Record type Uncertainties identified from clinicians' questions
Source James Lind Alliance Palliative and end of life care Priority Setting Partnership
Why is there uncertainty? No relevant systematic reviews identified

Original Uncertainty

Ranked 2nd in the PeolcPSP

This uncertainty was identified from two professionals' and one carers questions.

This is an indicative uncertainty and the following submissions were merged to form this one:
How to balance providing fluids to those who are dying who cannot swallow safely or easily?

References to reliable up-to-date systematic reviews:

Dai Y, Li C, Xie Y, Liu X, Zhang J, Zhou J, Pan X, Yang S. Interventions for dysphagia in oesophageal cancer. Cochrane Database of Systematic Reviews 2014, Issue 10. Art. No.: CD005048. DOI: 10.1002/14651858.CD005048.pub4

What is needed? Systematic Reviews
Systematic reviews that need updating or extending Sampson EL, Candy B, Jones L. Enteral tube feeding for older people with advanced dementia. Cochrane Database of Systematic Reviews 2009, Issue 2. Art. No.: CD007209. DOI: 10.1002/14651858.CD007209.pub2. Katzberg HD, Benatar M. Enteral tube feeding for amyotrophic lateral sclerosis/motor neuron disease. Cochrane Database of Systematic Reviews 2011, Issue 1. Art. No.: CD004030. DOI: 10.1002/14651858.CD004030.pub3
Systematic reviews in preparation Flynn EP, Smith CH, Walsh CD, Walshe M. Modifying the consistency of food and fluids for swallowing difficulties in dementia (Protocol). Cochrane Database of Systematic Reviews 2014, Issue 4. Art. No.: CD011077. DOI: 10.1002/14651858.CD011077.
Ongoing controlled trials A multicenter, prospective feasibility follow-up study to evaluate a fully covered stent with new antimigration properties for the palliation of malignant dysphagia: HANARO study [See web page]


Which health conditions? Neurological conditions | Service delivery, organisation and staffing | Palliative and end of life care
What is person's age? Adult
Which types of treatments? Education and training | Service delivery

Which Outcomes

Patient Satisfaction; health related quality of life; health related cost.

Record ID: Publication date:08 Sep 2015
Last reviewed date:08 Sep 2016 Publication Type:Known Uncertainty
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