What are the best ways to support children and young people when someone close to them is dying or has died? This includes communicating with them about the diagnosis and dying process, enabling them to talk about their experience and providing bereavement support.

Record type Uncertainties identified from clinicians' questions
Source James Lind Alliance Palliative and end of life care Priority Setting Partnership
Why is there uncertainty? Reliable up-to-date systematic reviews have revealed important continuing uncertainties about treatment effects

Original Uncertainty

Ranked 27th in the PeolcPSP

This uncertainty was identified from a patient's, four professional's and two bereaved carer's question.

This is an indicative uncertainty and the following submissions were merged to form this one:
And to what extent does frequent respite support for families alleviate these problems? This could benefit from much better understanding, epecially with lifespans of life-limited children increasing, as the strain on families can encompass much or all of the sibling's childhood. The extent to which they do, or need to, access mental health services coudl point towards the preventative value and value-for-money of regular lifelong respite.
I would like to know what advice is given to families with young teenagers who have a parent that is terminally ill and the youngster/s needs support from an outside source. I know the advice my late husband and I were given by a professional. I'm curious to know what is advice is given these days.
Why can children who have lost a parent only receive 5 sessions with a bereavement councillor?

References to reliable up-to-date systematic reviews:

None identified

What is needed? Further research
Systematic reviews that need updating or extending Rosner R, Kruse J, Hagl M. A meta?analysis of interventions for bereaved children and adolescents. Death Studies.2010;34(2):99?136. 2 [See web page] McDaid C, Trowman R, Golder S, et al. Interventions for people bereaved through suicide: systematic review. Br J Psychiatry 2008;193:438?43 [See web page] Perkins P, Dorman S. Haloperidol for the treatment of nausea and vomiting in palliative care patients. Cochrane Database of Systematic Reviews 2009, Issue 2. Art. No.: CD006271. DOI: 10.1002/14651858.CD006271.pub2.
Systematic reviews in preparation None identified
Ongoing controlled trials None identified


Which health conditions? Service delivery, organisation and staffing | Palliative and end of life care
What is person's age? Adult
Which types of treatments? Diet | Drug

Which Outcomes

Change in symptoms; change in management of symptoms; Patient Satisfaction; health related quality of life; health related cost, good death

Record ID: Publication date:08 Sep 2015
Last reviewed date:08 Sep 2016 Publication Type:Known Uncertainty
The DUETs team endeavours to ensure that information is correct at the time of data entry